Gotta Feel It To Heal It

Gathering my thoughts for today…It’s Homecoming Week for Levi at school this week. Yesterday was College Day so he wore one of my UWEC sweatshirts that actually used to be Jason’s. Today he came upstairs and I asked him what the theme was for today. It was “Cancer Color” day…so he was wearing gray for brain cancer awareness. Tomorrow is Decade Day…he wants to wear Jason’s old tennis warmup from when he was in high school. So many feelings for me wrapped up in all of that…one of them anger that my kid even has a “cancer color” he wants to wear. When I was in high school I don’t think I knew a single person with cancer. He knows several that are very close to him, not even counting his Dad.

At work today someone came in that didn’t realize Jason had passed away. I hadn’t seen her since April. When I told her that he has been gone for 10 weeks today she said “well, at least he’s not suffering anymore”. I HATE it when people say that to me. I’ve tried to say it to myself a few times to make myself feel better and it just makes me feel awful. To me it’s like saying that Jason is somehow better off dead. Of course I don’t want him to be in pain, but I don’t think things are better in any way, shape, or form now.

On Wednesdays I have virtual group counseling. I was very skeptical of it at first…but it’s weird…now I look forward to it every week. It’s a great group of women all supporting each other where we’re at. Today, at the end of the 90 minutes the counselor said “you have to feel it to heal it”. I kind of thought it was cheesy when she said it and chuckled a little bit, but it has stuck with me for the few hours since. The “feeling” part has definitely been happening this week…maybe the “healing” won’t be far behind.

A lot of the “feeling” for me has come from working on a new page for this blog. I am going back in my memories and Jason’s Caring Bridge site and writing a page about Jason’s Glioblastoma Journey. Going through all of that is bringing up a lot of emotions…remembering how we were so hopeful in the beginning…and how that hope was slowly taken away…how I was trying so hard to just hold everything together and keep up a positive spirit when my world was falling apart before my very eyes…the love of my life slowly losing more and more of himself…me wanting to be able to do everything to take care of my family and take away their pain…and failing…so much hopelessness….helplessness…frustration.

The upcoming Thanksgiving and Christmas holidays keep getting mentioned this week as well….and I get teary-eyed every time. Honestly, if it were just me I would probably ignore them the best I could, but I know Jason would want the kids and I to celebrate…so not sure what we’re going to do yet…but it will be hard…always more hard.

Duluth!

Missing the Happy Me

Feeling all sorts of emotional tonight. Might just have to sit down and have a good cry. Really missing Jason and having a partner to share all the BS that life likes to throw at me all at once sometimes. Luckily, I have really good friends and family to help me and commiserate with me when the suck happens, but at the end of the day it is just me…making decisions, worrying, trying not to eff things up, worrying, making sure my kids are okay, worrying. Then I get myself so wound up and exhausted that everything seems ten times worst than it is…and my person who could unwind me is gone.

I feel whiney, pessimistic, stressed, frustrated, overwhelmed, stuck, etc…and I hate it….I hate feeling that way. I miss the days when I blissfully thought that bad things only happened to other people….those were good, ignorant, happy days. Now I feel like I’m just always waiting for the next bad thing to happen. I hate that way of living.

My house doesn’t feel like home anymore…not without Jason. Everywhere I look he should be there. All of his things are still here…just waiting. Yesterday I thought maybe if I start going through his things…try to make the house more “me” instead of “us” it will feel better. I got as far as sitting on my bed with a garbage bag and then just sat there paralyzed….couldn’t do it. I know…I know…give myself grace and time. I’m trying. I just want him back.

Home

Rattling around the house
That used to be our home
Now it’s just all full of
Stuff
I can’t seem to let go.

Plastic tennis trophies collecting dust
I want to throw away
But then feel
Panic
They stay in boxes on the floor

Your nightstand is just how you left it
Empty Tums bottles
Kleenex box
Junk
I can’t throw in the trash.

So much stuff
I’m caught between
Wanting to let
Go
And holding on tight.

I look around and see you
Even though you’re gone
Our house still holds its shape for you
My heart
Not ready to move on.

I long to feel at home again
But my home was always you
These walls were just a container
Our love
Was the glue.

I will stay strong love on this Earth
Living this fake life
Until I find my
Home
On the other side.

Hearing “I Love You”

I had a hard time falling asleep last night. Usually I write or read until my eyes can’t stay open and then I’m out. Staying asleep is usually the hard part. Last night I just lay there thinking about how much I miss hearing Jason say “I love you”. For almost 21 years of marriage those were the last words I heard every night before I went to sleep…and the last 15 months when his memory was untrustworthy he would sometimes say it more than once. He would say “I love you” and then “I can’t remember if I said it or not yet”. I would just tell him he could tell me a million times and I wouldn’t mind.

Sometimes when he was having a rough day he would follow-up his “I love you” with “Thank you for taking care of me”. To which I would respond “You don’t have to thank me for that. You would do the same for me”.

When he was first diagnosed he would get really frustrated with himself when he couldn’t remember things…details about his doctor appointments and such. I told him not to worry about all that…the only thing you need to remember is that I love you and the kids love you. That’s it. And you know what? He never did forget that. He couldn’t keep track of anything else…day of the week…plans for the day…whether he had eaten or showered on a particular day…but love…that he remembered.

Those three words are powerful…don’t forget to use them.

Good Memories Today

Today was a nice ending to a topsy-turvy week. I went to Jason’s Mom and Dad’s house and had the best time sharing memories with them and my SIL, Jackie. We laughed…we cried…we supported each other in our sadness over losing Jason…we ate birthday cake. It was just what I needed…and I wish I would have done it sooner.

This morning I finished reading a book called, “It’s OK That You’re Not OK: Meeting Grief and Loss in a Culture That Doesn’t Understand” by Megan Devine. I read it through the first time kind of fast and now feel like I need to read it again to really soak it in, but this is the start of Chapter One and I feel every word of this so deeply

Here’s what I most want you to know: this really is as bad as you think.

No matter what anyone else says, this sucks. What has happened cannot be made right. What is lost cannot be restored. There is no beauty here, inside this central fact.

Acknowledgement is everything.

You’re in pain. It can’t be made better.

The reality of grief is far different from what others see from the outside. There is pain in this world that you can’t be cheered out of.

You don’t need solutions. You don’t need to move on from your grief. You need someone to see your grief, to acknowledge it. You need someone to hold your hands while you stand there in blinking horror, staring at the hole that was your life.

Some things cannot be fixed. They can only be carried”

p. 3

And that is why today was what I needed. No one was trying to “fix” me….or cheer me up….or got uncomfortable when I cried. No one was offering me empty platitudes…telling me I should be grateful because he’s in a “better place”. We all want him back here…and miss him so deeply.

On my way home I could almost feel Jason sitting next to me with his hand on my leg. I almost reached down a couple times to put my hand on top of his and rub my fingers on his weird fingernail that had this ridge in it…as I would often do while driving. And then I started thinking about a poem that I have been working on and all the words to finish it came to me. This one is for you Kent and Jan from Jason.

When you think of me
I know your hearts are sad.
But I loved you more than anything,
Mom and Dad.

You taught me how to swing a bat
Eat all my peas
Hit the ball
Right off the tees

You were my biggest hero
In my athletic career
For every game and match
In the stands you’d cheer.

You taught me how to be a man
How to live with integrity
Stand up for what I believe in
Let no one pressure me.

You taught me how to be a husband
I had an amazing wife
We loved each other and were so happy
All our married life.

You taught me how to be a dad
To my sons and daughter
The greatest blessings of my life
I was a very lucky father.

Someday when you look at my pictures
I hope that you can grin
Although my life was way too short
I’d do it all again.

Done Insurance-ing

Well, I feel like after today I can put at least a small checkmark next to Life Insurance on my long ass list of Things To Do. I have all the “have to be made right now” decisions done and can breathe a little easier now…and pay my bills. No van down by the river for us.

Linc, Emmett, and I met up with a friend of mine tonight and her dood Scarlett to go for a walk. Linc and Scarlett had met when they were puppies and Emmett had never met Scarlett. The five of us had a good walk and it was good catching up with her. The doods enjoyed making a new friend.

Now I’m just sitting here feeling extremely tired and sad. I miss having Jason to share my evenings with…to talk about our days…unwind together. Instead I blog, which does help me process my day…but it’s no replacement for Jason.

At the Minneapolis Sculpture Garden

2 Months

Feels like 2 hours, 2 days, 2 weeks, 2 years…somehow all at the same time. I had a really strange dream about him last night. To understand my dream you would have to know that Jason ALWAYS had chapstick in his pocket…and I never did. I was forever asking to use his…or kissing him after he put it on…maybe TMI…but this is my blog after all…lol. In my dream he had three chapsticks in his pocket…but one of them was the BAD chapstick…I snuck it away from him and then was trying to find somewhere in our closet to hide it because if he found it something BAD would happen. It was very unsettling to wake up after that…but at least I slept?

Today I met up with a friend of mine who specializes in turning t-shirts, sweatshirts, and other clothing into quilts. She is making me one out of Jason’s favorites…all those tennis t-shirts, a few shirts from trips, a marching band sweatshirt for our Anna. It felt like the right decision to give them to her…but there were a couple tears on the way home. It is hard to let go…even of these things I know I will get back in a way that I can actually use.

This is a bit of a bookend week for me. 2 months today and then Jason’s birthday is on Friday. I hate all the “firsts” without him. I’m already dreading the Holidays. If it weren’t for the kids I would just pretend they aren’t happening.

Bunco

Tonight I let one of my friends talk me into going to her neighborhood ladies’ bunco night. In the “normal” past I would have been all excited to try something new…there would have been no having to “talk me into it”…now it is just hard.

Social situations give me anxiety in a way they never have before. I have an impossible time relaxing…having fun is hard and makes me feel guilty…I don’t want to be a downer…I feel out of place…staying home in my “safe place” is a lot easier.

Tonight I tried it though and I had fun! I had a couple times where I had to take a few deep breaths and tell myself I was fine…but for the most part I did okay! They seemed to like me and even invited me back…so I guess I wasn’t too quiet and weird. It was a really good ending to a rough, rough week.

Sleep has been impossible lately. I am having a really hard time not having Jason next to me. I find myself laying on my side facing away from his side of the bed…as far to the edge as I can get…like I just want to avoid the emptiness. Linc sleeps with me which kind of helps me fall asleep initially, but I always wake up after about 2 hours and then can’t get back to sleep. I feel like I have permagrit behind my eyelids and the bags under my eyes are unreal.

I had the Vets scheduled to come today and pick up a few bags of Jason’s old clothes. I sorted through the majority of his clothes on Monday…saving some and donating some. I felt okay while I was doing that, then the time came this morning to put out those bags and I just couldn’t talk myself into taking that step. It just doesn’t feel right to get rid of any of his things yet. Someday…maybe…

March 2020: Blissfully Unaware of the Cause of His Headaches

Most Days

This wasn’t going to be a poem post…but this is how my words want to come out tonight I guess.

Most days I feel like I am pretty good
At hiding true emotion.
I get through my day at work
Hide that my heart is broken.

People ask me how I am.
I lie and say I'm fine.
Hanging in there.
One day at a time.

Some days I hold it all in
Until I pull into the garage,
Then all the little reminders
Hit me in a barrage.

Today was not most days.
The mask would not stay up.
My eyes kept overflowing.
There was a huge hole in my cup.

I couldn't lie when people asked me
Are you doing okay today?
All I could do was shake my head
And say the tears won't stay away.

But then you know what happened?
I let some people in-
Affirmed that I am not alone
And now I can breathe again.

Today I feel his presence
I know he would be proud of me
For reaching out to those we love
Who are grieving alongside me.

Grief is an impossible journey
That never really ends
But together maybe we have a chance
As it twists, and turns, and bends.



2016

8 Weeks

Tomorrow…Wednesday will be 8 weeks. Every day is worse. My hurt keeps getting deeper. My missing him gets more and more. My emotions are all over the place. I don’t know how to center myself without Jason here to “talk me off the ledge”, help me find grace, and remind me about the important things in life. He knew just how to do that….listen to me…and then defuse. He wasn’t afraid to tell me when I was being ridiculous…and he was always right. Now everything feels huge.

Relationships with other people are hard. They take a lot of energy. I feel like everyone is tiptoeing around me…not sure what to say or do. Should they talk about Jason? Not talk about Jason? YES PLEASE! Talk about Jason. That is all that is on my mind. Tell me your memories. Talk about the good times. If I start to cry that is okay…at least I’m not crying alone all by myself.

I feel this weird possessiveness over all things Jason…like Golum in the Lord of the Rings. “mine. mine. mine. my precious”. I just want him back. So badly. He should be here.

I keep pushing people away. Not responding to texts, phone calls, emails. Inadvertently hurting people that try to help. Then I feel left out and am hurt even more. Too many feelings…all conflicting with each other. No one that really seems to get me. I don’t even get myself.

Someday it will get better?

Snapshots of Memories

Jason was the photographer in our family. He would often take a picture and then say…”documented”…as if it was his job to make sure that particular moment was preserved for all time. He would make fun of the pictures I would try to take. I’m not good at lighting…setting the scene…centering…not getting my fingers in the picture…all that photographering stuff.

Now I am constantly flipping through the pictures on my phone. I feel like Harry Potter gazing into the Mirror of Erised at his heart’s desire. And now through the magic of live photos on my iPhone I can see the photos come to life for a few seconds…also very Potteresque. I have one of those live photos as the lock screen on my phone right now. Feels like a million times a day I press my finger to it just to watch Jason grin as I nuzzle my (probably freezing cold) nose into his neck

And since all my thoughts ramble around in my head as verse these days…

Photos

Photos hold a power
They are more than just a face
Nay...they are a memory
Frozen in time and space

All the trips we took together
Hikes at the state park
Holidays and everydays
Selfies taken on a lark

Now I look at photos
Searching for his smile
Bringing me good memories
At least for a little while

Others look at the pictures
And remark how happy he looks
We had the greatest life
One for the history books

But all they see are the smiles
Not the memory
Those are private moments
No one can take from me.