Powerful Memories

Today was another day where I was pulled between memories of the past and the present. The kids and I worked a lot out in the yard this morning. It felt really good to be working together as a team. The fence posts are being installed in a week! Seth reassured me that we are making good progress and that everything will be set to go. We also had birthday dinner for Seth tonight with family and friends. There were a lot of smiles and laughs.

I kept getting pulled back here though…

where Jason and I were a year ago. Dancing to our song one last time at Jeremy and Cheryl’s wedding. His attention completely on me. His hands on my waist. His eyes locked with mine. Not speaking many words past “I love you”…but his eyes saying so much more…the most painful of which was “goodbye”.

One of my most precious memories…and one of the most painful.

Happy Birthday Seth

Today is Seth’s 19th Birthday. Seth is our easy-going, sensitive, deep-feeling, introverted middle child. He reminds me of Jason in so many ways. There’s not a lot that bothers him…most things can roll right off his back…but he also feels his feelings very deeply and holds them very close to his chest. He doesn’t care about the “trivial” things in life…like who gets shotgun in the car (he lets Anna and Levi duke that one out)…or material things…he has a few things he is passionate about (tennis, his friends, video games) and devotes his time to those. He’s the one that will give me a hug without squirming away and his dry sense of humor makes me laugh. He is in no hurry to “grow up” and does things in his own time.

When I asked him what he wanted to do for his birthday his only reply was “dinner at B52’s”. We are actually doing that tomorrow with some family and friends. This morning he kept saying he didn’t want to do anything and didn’t want any birthday gifts. He is my blueberry-loving kid…so I decided to make him a blueberry pie. Making putzy desserts is not my favorite thing to do, but it was worth it to see the smile on his face.

My heart and mind keep taking me back to this day last year. It was the day before Jeremy and Cheryl’s wedding and Jason was in rough shape. He was suffering from a horrible headache that the pain meds weren’t even touching. I had Jeremy go check on him while I was at work and he never even woke up the whole time Jeremy was there…even though the dogs were going nuts. I spent the morning at work sneaking phone calls to Jason’s nurse trying to figure out some new combination of meds to try. Luckily, we were able to get the pain under control right before rehearsal and dinner.

It’s days like today where I feel pulled between the past (Jason) and the now (our kids) that are an even harder struggle for me. I want our kids to know that I am here for them and that things like birthdays and holidays are still worth celebrating, but at the same time I feel so sad and checked-out. A friend of mine reminded me today that Jason and I raised three kick-ass kids who are phenomenal human beings and doing just fine…and that making Seth a blueberry pie on his birthday just to see him smile proves that I am still a kick-ass Mom…so I guess I’ll keep blundering along as best as I can.

Glioblastoma Awareness Day

Today is National Glioblastoma Awareness Day…I would love nothing more than to be frolicking through life blissfully unaware…instead I am all too aware of the devastating effects of this absolute monster of a cancer.

Another rough day today. Hanging on by a thread at work…choking back tears. Tried to focus on getting some more work in my yard done and ended up at my neighbor’s crying, chatting, and drinking on her deck.

Everything feels harder as the year mark approaches. I think I was hopeful that something would feel easier…that I would find something that helps ease the pain a little bit. Instead everything feels harder and I find myself drawing more and more into myself. I’m tired. Tired of hurting. Tired of feeling overwhelmed. Tired of feeling lonely. Tired of trying to figure out this shit life all by myself. Tired of feeling paranoid like everyone is peering at me from the outside…watching me…waiting for me to “move on” or “get better” so that I’m fun again and they don’t have to be afraid to say or do the wrong thing. Tired of masking my emotions…the whole “fake it til you make it”. Tired of feeling like a complete stranger to myself.

One Year

And my foot still drifts across the bed
Searching
When the alarm wakes me

A vast expanse of cold sheets
Emptiness
Your warm body gone

And I wish that I just wouldn’t wake
Drift
Go find you waiting in the clouds

And we could be Ree and Jas
Forever
How it was meant to be

But instead I am stuck here
Lonely
A stranger to myself

And my smile and laughter feel
Forced
No sparkle in my eyes

My existence overwhelmed by
Sadness
All consuming sadness

Head and heart so heavy
Fighting
Trying to find some sliver of hope

One year
Gone
Too many more





July

I’ve been quiet again lately…I know. The past few weeks have been extremely difficult. My mind keeps taking me back to July 2021. Replaying the last month of Jason’s life in my head. Tomorrow, July 20th is the day we saw Dr. Neil for the last time and she referred Jason to hospice. He had already stopped treatment…hoping that would help him feel better…it didn’t. He was in constant pain. I was communicating with his team daily trying to find the right combination of meds to bring him some relief. He had fallen a few times in the house. I didn’t know how much longer I would be able to work because I was terrified something would happen while I was gone.

I have been really busy during the day. Last week my new roof was installed. Yeah for crossing that off the list. I have been working really hard in my yard. The posts for the fence are being installed on August 1 so the line has to be cleared before that. I had a tree company come and cut down a few trees last week. I have had help from friends and family clearing, cutting, trimming. I decided that I want to move my gazebo into the back corner of the yard to make my peaceful spot. I ordered some wooden flooring for it and a canopy that should work as a roof. I’m looking forward to getting that all set up and in place.

Everything I cross off my list I hope will be the thing that will magically make me “feel better”…but the truth is that none of it really does. Yes, it feels good to get all these things done around the house…but that doesn’t touch my deep sadness and loneliness. The person that I want to share it all with is gone…and nothing can fix that.

I’ve been listening to this song a lot lately. I feel like it’s what Jason would say to me right now….but damn I just can’t figure out how…and honestly don’t really want to.

The Daily Slog

I’m struggling to write lately. A combination of things I think. During the week, I just slog along getting through day to day, moment by moment. Tackling each day as it comes along and basically just trying to make sure the kids get where they need to be and get attention from me. Levi is at a really hard age this summer where he is bored all day at home, but also not able to drive himself anywhere so I try to give him extra attention in the evenings.

I also just feel like I don’t have anything to say…except “Hey there. It’s Marie again. Life still sucks.”

Last week I went to a tennis drill for the first time since Jason died. I had done a few private lessons, and I was fine with those. The drill hit me in a whole different, unexpected way. I think it was too much like playing a match and suddenly I had this whole loop going through my head of how unfair it is that I am still here doing “Jason’s thing” and he isn’t. I managed to breathe myself out of ugly crying and a panic attack and finish the drill…but it hit me hard…and I still get teary thinking about it. Jason hated it when I stopped playing tennis “because of him” so I’ll keep going…and hopefully it will get easier.

Panic attacks seem to be my new MO…and they suck.

I was talking to somebody this week about how a person can do anything hard when they know there’s an end….especially if there is a desirable outcome. A hard workout. Childbirth. A sucky day at work. For the 15 months that Jason had cancer the hard just kept harder as his condition deteriorated and more and more of him was taken away…with the only possible end being death. And now for the past almost 11 months it’s been another whole new hard that keeps getting harder…with no desirable outcome really…no end in sight. Cue the panic attacks.

I’m struggling along. Just doing the next thing that needs to be done. Tons of things just falling through the cracks while I try to keep myself together. My rose-colored glasses have been shattered. My positive outlook on life nowhere to be seen. I’m constantly on edge waiting for the next shoe to drop…the next thing to break…the next thing I need to deal with…the next disappointment… Again…cue the panic attacks.

I feel like my world has drastically shrunk…my community dwindled…because I just can’t feel connection with people anymore and I don’t have the energy to try most of the time. I am just tapped out. Most social situations give me anxiety. I feel like I make people uncomfortable because they don’t know what to say to me and I don’t know what “normal” conversation is anymore. I can’t focus and find myself staring into space…probably counting down the minutes until I can leave….or have another drink. Too much self-medication. I know. Can’t bring myself to really care. Don’t judge my bandaids.

My whole being is one big ball of lonely hurt and sadness….and the only person that could give me hope that I can make it and be okay somehow is gone. Cruel irony of grieving a spouse I guess. I miss him so bad that “miss” doesn’t even seem like the right word anymore.

First Father’s Day

Seems like I can’t have a post about “lasts” without following that up with a post about “firsts”. Meeting at 18…falling in love…going to college together…figuring out the adult world….Jason and I shared a lot of “firsts” with each other. Some of them were very intentional. For example, neither one of us had flown in an airplane, seen the ocean, or been out of the country. We really wanted to do those things for the first time together…and we did…mostly. First airplane trip…he flew to Denver first for a work conference and then I met him a few days later…still counts…lol. The vast majority of those “firsts” were happy and made some of the greatest memories.

Then 26 months ago…another “first”…first time we heard the word “glioblastoma”…and suddenly the “firsts” aren’t marking happy events, but sad. First surgery…first seizure…first nosebleed that won’t stop…first fall…etc. And those sad “firsts” have continued for the past 10.5 months…except now I’m facing them without him.

Today was an especially hard first for the kids and I…First Father’s Day without Jason. The boys both had tennis matches this morning and Anna worked all day. I was feeling rough and emotional this morning so I stopped by Jason’s bench and calmed myself down a bit on the way to watch the boys play.

Jason would have thought watching tennis on Father’s Day morning the perfect way to start the day. The boys both won their matches so that was a bonus.

We had decided that we weren’t going to go out to dinner for Father’s Day, but make some of Jason’s favorite foods at home instead. We made ribs on the grill…cheesy potatoes…green bean casserole…and bread pudding. It all turned out great.

And then we topped the day off by playing Clue together. I teased Anna that she plays Clue just like Jason used to…takes forever to decide on her guesses and her game sheet looks like hieroglyphics…lol.

Today I’m trying to focus on gratitude that my kids had their Dad in their lives as long as they did. That they are all old enough to have many years of great memories of their Dad. His kids were always his biggest priority. He was always so proud of them and wanted them to be happy. Even when he couldn’t remember the day of the week he wanted to make sure he was at every tennis match…and he absolutely loved the times when his “Annie” was home from school. I know he’s smiling down at them now and so proud of them.

“Lasts”

My Facebook memories have been hitting me right in the feels this week with pictures of our family vacation to Ruttgers on Bay Lake from last year. Those memories have me thinking a lot about “firsts” and “lasts”…sometimes you know they are important while they are happening…sometimes not. Some are milestones that we mark…almost religiously…first and last day of school for example…that are more developmental. Some are more life-altering…some become the moments that we measure our lives by…the ones deeply etched in our memories.

The summer of 2020 after Jason had his first surgery and chemo and radiation we rented a cabin on a lake Up North with Jeremy and Cheryl. I remember feeling so clearly that it might be our last family vacation that I put all sorts of expectations on it and pressure on myself to make it “perfect”. And of course, it wasn’t perfect. It was rainy. The fish wouldn’t bite. The kids were all a little “extra”…understandably so…they were trying to get a handle on reality as much as I was. I had myself so wrapped up in the idea of “last” that one night Jason and I were in the shower and I literally had a break down…ugly crying so hard I coudn’t stop…hyperventilating…sitting naked in the shower with my head between my knees…on the verge of throwing up or passing out or both. And all I could say to Jason was “What if this is the last? I can’t do this by myself” over and over. And Jason did what he always was able to do…talked me down…held me…put me back together.

And that horrible experience stuck with me so much that I vowed not to do that with the “lasts” anymore. Not too hold on so tight to expectations. To just let events unfold organically. Even when I KNEW they would be the lasts….because I did know. Our last anniversary. His last birthday. Last Thanksgiving…Christmas…Easter. And then our last family vacation last year. It was at the place that we had enjoyed as a family for so many years…and it was perfection.

As I have been reminiscing about our last perfect family vacation I have been thinking about other things that make me smile day-to-day…and I tried to write a poem that is maybe a little more uplifting…I’m trying.

Good in Life

When so much of life doesn’t make sense
Trying to get through moment to moment

Reminding myself of the good left in life

The things that make me smile
Laugh
Feel peace for a second
Give hope for a future
Somehow
Without you.

Anna
Seth
Levi
Pieces of you
Pieces of me
Mingled together
Perfectly.

Linc
Emmett
Crazy antics
Kisses on my face
Force me to face
Morning.

Birds in the backyard
Coffee
In hand
A pair of cardinals
Feed each other
Breakfast.

Family
Yours
Mine
Check on me
Don’t let me
Hide.

Friends
Acceptance
Make me laugh
But also
Let me
Cry.

Purple flowers
Blossom
Bring simple beauty
Color
To a gray
Life.

Perfect words
A lyric
A poem
Encapsulate emotion
Build
Community

Ease the unrelenting loneliness

Underneath it all is so much sadness
But, Babe, I’m trying.

Moment by moment.

 

The Spaces

I know I haven’t been writing much. Life is kicking my butt and I’ve been busy constantly taking care of “stuff”. I did manage to cross two things off my list. First and foremost, I fixed my own dishwasher!! Yes…I had some suggestions of what to do from my boss, but I fixed the damn thing! Luckily, the only tools I needed were a screwdriver and a shopvac. Super gross moment when I stuck the hose in the gross dishwasher water and accidentally “blew” it instead of “sucked” it all over myself….who knew the shopvac could even do that?? Second, Seth’s car is all fixed from the hail damage…and now mine is having it’s turn so we are still down a car…but progress is being made.

Other things that happened this week. I got estimates for two types of siding for my house…so now I’m trying to decide which one to go with….ugh…I hate making those types of decisions. The insurance adjuster was out looking at my house. He took a lot of pictures, so hopefully that’s a good sign. I paid the downpayment on my fence, so now I have to get the fence line cleared before Aug 1. Yikes! I also had a weird bug that seemed to really only involve a fever. Woke up Wed morning at 1am with a fever of 101. Fevers make my body and mind do weird things and I hate them. But luckily tylenol and ibuprofen did the trick and now I’m fine. And last, but not least, Levi got All Conference for Tennis. There wasn’t a ceremony…he was just modeling his new dress clothes…lol

Today was kind of a quiet and lonely day. Went to breakfast with the kids this morning and then Anna and I went to Barnes and Noble. I picked up a couple fantasy books and a couple poetry books. Really wanted to find a good fiction book I could lose myself in today, but it hasn’t really worked. Mostly I’ve had this poem writing itself in my head all day. Maybe now that it’s out I can read…ha!

The Spaces

It’s in the spaces
That I miss you.
The space to my left
Where you would walk each evening
My hand in your elbow
Pups along at our sides
Tongues hanging out
Happy to be alive.

It’s in the spaces
That I miss you.
Beside me in the car
Your hand on my thigh
Mine tracing your thumbnail
That weird flat spot
Didn’t matter where we were going
You and me on a drive.

It’s in the spaces
That I miss you.
The smell of tennis balls
The “pop” of a forehand
A fistpump
Look to the sideline
I give a grin
Happy to be your biggest fan.

It’s in the spaces
That I miss you.
Sitting together
Cuddled on the couch
Wine in hand
Long day unwinding
Perfection
At peace with my man.

It’s in the spaces
That I miss you.
Together watching our kids
The games and the matches
Band concerts
Marching band shows
Graduations
Proudest of parents.
It’s in the spaces
That I miss you.
Ree and Jas
Out with friends
Dinner and drinks
The smiles and laughs
Carefree and happy
Cherished moments.

It’s in the spaces
That I miss you.
In that drowsy time
Between asleep
And awake
Spooned into your body
Complete contentment
No one else exists.

It’s in the spaces
That I miss you.
Where only you belong
Now I struggle
To make sense of life
Where your light
Was bright
Now darkness.

10 Months

This week has been ROUGH. I told my therapist yesterday that I’ve had this line from a children’s book running through my head. I read it to my kids a million times, but I can’t remember the title….but the line is “sometimes I want to curl up in a ball so no one can see me because I’m so small”.

After a good weekend with my parents…we got my garage cleaned out…yeah! My week went downhill pretty quickly. Woke up Tuesday morning to my downspout hanging off the side of my house and my gutter dented. No idea how that happened. One more thing to take care of. Then my “service engine soon” light came on in my car. I’m sure it just needs an oil change. One more thing to take care of. Wednesday morning my dishwasher stopped draining. One more thing to take care of. Yesterday we dropped Seth’s car off to get the hail damage fixed so we’re down a car for awhile. One more thing to sort out. I cannot handle anymore “one more things”!!!

Wednesday the landscaper came out to meet with me and we walked around the yard and talked about what I’m looking for. I knew that I really needed to work with someone on this project who I can feel a connection with because it is very important to me that it is done right. I told him before we even walked around the house that my husband passed away in August after battling brain cancer for 15 months and that I need my backyard to be a place where I don’t feel stress. A place where the kids and I can hang out…the dogs can play…a special place for me. Thankfully, he completely got where I was coming from. So much so that when I told him Jason bought me the gazebo and that it was my peaceful place for the past 4 years he suggested using parts off it somewhere in the landscape design. I can’t wait to see what he comes up with!

And so it’s been a week of high stress and very high anxiety. Mornings where I’ve woken up…but not wanted to…dragged myself out of bed…somehow got to work…and then had to sit in the parking lot and breathe my way out of a panic attack….get my “work mask” as firmly in place as I can…and then fight my way through one more day…and one more day…and one more day. And when I say “fight” I am not using that word lightly…because I DON’T WANT TO.

So 10 months. I just want to stop going forward. I feel like time is just taking me away from Jason. I know that’s not true in my head….but my heart doesn’t care what makes sense.

I miss my husband so bad. I told my therapist yesterday that I miss the feeling of being so completely and perfectly loved. “Soulmates” is such a cheesy word…but we were that for each other. Two imperfect people that perfectly fit together.

The Knowing

No feeling in the world can beat
Feeling completely loved.

When another soul looks at yours
And sees all the broken messy bits.

The insecurities
The failures
The hurts

And doesn’t accept you despite them
But because of them

Because they are what make you.

And in that person you find your home

Your refuge
Your safety
Your peace

Your souls will form a bond
Unbreakable by time, distance, death

Your hearts will beat together
The rhythm of your love

Your bodies will search for each other
Like polar ends on a magnet

And that’s when you know.

Memorial Weekend

It has been a busy, busy week. Levi wrapped up his tennis season playing singles in Individual Sections on Tuesday and Thursday. He won both of his matches on Tuesday and then lost against the #1 kid in the State on Thursday. I think that loss only showed him the things that he needs to keep working on and added fuel to his fire. We were both really sad that he couldn’t share this tennis moment with his Dad, but he does have a lot of support and had a phenomenal group of guys there cheering him on. These guys have been steadfast in supporting my family these past two years. They put up with me daily…and make sure my boys are okay and get plenty of opportunities for good tennis.

My parents also came on Thursday just in time to watch Levi’s match and are with us this weekend. It has been great having them here. They helped me get my garage cleaned out so I can actually park the cars in there again. Yeah!! I’ve been dealing with the insurance company for hail damage to my cars and roof from a storm about three weeks ago and really don’t want to go through all that hassle again! We also took a walk to Jason’s bench, went to a garden center, and my sister and her family came over for pizza last night. It’s been a good weekend.

This week I have a landscaper and a fence company coming to give me estimates and ideas for my yard. Right now when I look out at my yard all I feel is stress because I see all the work that needs to be done. I want my yard to be more of a sanctuary for my family. Where we can just hang out together…eat outside…have fires…let the dogs run around. I also have a dream of having a “me spot”…a place where I can drink my morning coffee…or a glass of wine in the evening…write…maybe some sort of water fountain…hammock…pergola maybe. We’ll see. Jason gave me my gazebo to be that place for me before, but now that the gazebo is worn out I need a more permanent place. It’s also something I can feel a little excited about, which honestly, is a feeling I don’t feel much anymore. I either absolutely don’t want to do things, or I tolerate things….and those things usually only with a few drinks. So a project that makes me feel excited and gives me something to look forward to feels really good right now.